GM-CSF Inhalation Promoting Organization

Overview

Overview of Activities

  1. （1）To hold GM-CSF inhalation therapy meeting.
  2. （2）Gathering information on new usage/dosage clinical research, support for trial implementation, and publication of papers.
  3. （3）Information collection and implementation support/paper publication on off-label use (clinical research).
  4. （4）Medical consultation for refractory pulmonary alveolar proteinosis.
  5. （5）Diagnostic support for pulmonary alveolar proteinosis. (including hereditary and secondary)
  6. （6）Support for the “Japan Pulmonary Proteinosis Patient Association” secretariat.
  7. （7）To distribute Information via HP/mail, study group intellectual property management. (management of members-only HP pages)
  8. （8）Research conducted and supported by GIPO.
    1. Long-term prognosis study of autoimmune pulmonary alveolar proteinosis (Real PAP History study)
    2. Epidemiological investigation of autoimmune pulmonary proteinosis onset after dust exposure (Miyagi Prefecture after the Great East Japan Earthquake and  Ishikawa Prefecture after Noto Penisula Earthquake are the field).
    3. Pharmacokinetics after single inhalation in healthy subjects (specific clinical research aimed at optimizing inhalation method).
    4. Retrospective cohort study after the PAGE study (survey on the actual situation of pulmonary fibrosis).
    5. Clinical trial to evaluate the effectiveness of remission maintenance therapy in the inhalation therapy response group and the effect of increased dose inhalation in the non-response group
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